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Posts attached with hashtag: #childhoodcancerawareness
My son remembered his torturous cancer treatments with close to 80%accuracy. I use the word torturous because they are... there is nothing easy or gentle about being treated for cancer... it is like being tortured at times. So I get very upset when I hear parents of young children get told by someone who has no idea what they are talking about assure them their child “won’t remember “ and that what they went through will “all be in the past”. That is a dangerous lie. Just like anyone recalls trauma, children recall the trauma of cancer treatments. They may not have the language to express it; they might not understand what happened to them or why; but the memory of pain and fear remains. The scariest thing in my opinion would be to move forward in life with a child who survives cancer and not expect him to have some residual PTSD or emotional concerns. How sad for a child who would feel these things and not have a voice to express it because it was silenced when they were little. Children need to acknowledge their experience in order to own their journey💞 #pediatriccancerawareness#pediatriccancer#unravelpediatriccancer#childhoodcancer#childhoodcancerawareness #childrenhaveavoice#childhoodcancerwarriors
Over the last few weeks Jack has been adjusting to changes in meds. He’s also been having his Blood Glucose checked. Last week he got quarantined to my mums because both me and Ruby had the lurgy. His immune system is pretty strong I think but I won’t take chances. He enjoyed a sleep over with my brother on Friday and then at Lee’s Mum & Dad’s Saturday. I was definitely glad to have him home and back to normal on Sunday. We had a little scare again yesterday. He banged his head over the weekend and it was very sore to touch. I thought I could feel a lump so called Alder Hey to ask for advice. They told us to come in and see the ANP team. After obs and examination it was decided there was nothing to see and to just keep an eye. The problem is his relapse was in the skull, and as I wasn’t there when he banged his head I can’t really know if the soreness was there before or not 🙈 I met with Jack’s class teacher and the school SENCO to review his EHCP as he has changed meds and now we need the school to administer, this is new to them so good to talk through it all properly. When your child has additional health needs like Jack you end up doing most of it on auto-pilot. Only when you have to explain to someone who doesn’t know the routine; the signs and procedures to follow, do you realise just how much stuff you hold in your head. Pretty impressive really! So shout out to all the parents/carers managing the meds & symptom checker schedule while juggling the other parental responsibilities, you are bloody marvellous. Lastly; how utterly beautiful is he? I mean, I know I am biased but his little face, even when he can’t be doing with posing for me 🤣. Heartbreaker 💙 #histiowarrior#langerhanscellhistiocytosis#lch #childhoodcancerawareness
•UPDATE• Thank you so much to everyone who came and celebrated my end of treatment with me! I had so much fun having so many friends surrounding me celebrating with me. I couldn’t ask for any better people to have come into my life. I’m so happy to be done with treatment and all that nasty chemo. We have already made big plans for this summer like finally being able to go to Germany! If you didn’t know we were supposed to be going to Germany the summer of 2015 but I was diagnosed and had to start treatment and plans changed. I have yet to meet my nephew and niece who are three and not even a year old niece. I also haven’t seen my cousins and brother in many many years, my cousins have been desperately wanting to see me which makes it that much more exciting! We will be there for three weeks so it will give me enough time to see everyone! Did I tell you one of my cousins is a professional opera singer!? Many good things are coming my way and I can’t wait to see what the future holds! Thank you to everyone who wished me best wishes and even though you couldn’t be here you still celebrated with me!❤️ #acutelymphoblasticleukemia #childhoodcancerawareness #endoftreatment#chemodone#chemotherapy#all#bloodcancer#gogold#morethan4
Another stop at the toy factory!Cameron is the perfect grocery store clerk!
Unbelievably it’s Tuesday already. Anna has finished session 19 and 20, and that means she has had all the full head and spine radiotherapy sessions. Tomorrow she starts the boosts to the two tumours in her spine and her head where the original tumour was. Anna is doing well and has been in good spirits this week. Last week she was dressing as Belle, this week she will be mainly appearing as Elsa! As you can see Peppa Pig sneaked into Anna’s mask today! Each day we go down to radiotherapy she gets excited to find Peppa, Suzie and Rebecca who are hiding from her. We also got some flowers to brighten up the room and Anna helped with cooking dinner. 🧡🧡🧡 #annapoppysarmy#peppapig#radiotherapy#childhoodcancer#elsaofarendelle#frozen#frozen2#elsa#princesselsacostume#disney#disneysfrozen#olaf#spring#springflowers#cookingdinner#helpingmummyanddaddy#fundraising#crowdfunding#charityfundraiser#raisingfunds#childhoodcancerawareness #curechildhoodcancer#greatyarmouth#norfolk#loveourcommunity
Start your engines! The Minnesota Ride for Kids is happening on July 21 at Jimmy’s Event Center. Register to ride or donate today to help families facing a pediatric brain tumor diagnosis at link in bio or rideforkids.org/minnesota. . . . #minnesota#pbtf#rideforkids#motorcycle#motorbike#moto#motorsport#braintumorawareness#childhoodcancer#childhoodcancerawareness #carecurethrive